So last week Imogen finally had stage two of her ENT investigations. We were up early and off to the Norfolk and Norwich for a scheduled Laryngoscopy and Airway Endoscopy. Obviously due to her age they decided it would be best to do this under a general anaesthetic, so we had already completed the pre-op checks a couple of days previous.
Imogen made herself at home within minutes of being shown to her bed on the ward, the bag was unpacked and she had to introduce the nurses to all of her princess dolls bless her. Luckily because she was the youngest on our bay she was scheduled to be the first on the afternoon list. So we hit the toy cupboard to pass some time and a few puzzles and books later the nurse came to put her ‘magic’ cream on her hands, it’s scary how quickly things can change when someone is scared. Imogen went from chatting, singing and entertaining the bay to hiding in her bed, not moving and getting quite distressed, the crazy thing is with Imogen she has things done at hospital all of the time and is so brave but anyone mention the word plaster or attempt to put one near her and she freaks out BIG TIME!!!
I think it’s a fear that has stemmed from her first ever blood test and it will be there I’m sure for a long time to come. Poor little luv had the cream on both hands and it was all going really well until those big sticky pads went over the top, then that was it Imogen disappeared. I literally had to sit on her hospital bed with her and cover her hands with mine so she couldn’t see them, and that’s how we remained until they fetched us for theatre. The only time she moved was to go to the toilet but she held her hands out as if she couldn’t move her arms, bless her little heart.
So both Imogen and her best comfort teddy Bambi were tagged up and ready to go. Lucky Mummy got to ride around the hospital on the bed with them both, whilst Daddy followed with the bags behind us. When we reached the anaesthetic room I was pleasantly surprised how easy and relaxed this part was. The last time Imogen went under anaesthetic I literally had to wrestle her very distressed body and hold the gas mask over her face until she went floppy, it was torturous. This time it was a totally different experience, the anaesthetist was fantastic he sat Imogen on my lap and she watched pepper pig on a little tablet whilst he stood behind gently cupping his hands and the tube under her chin so she wasn’t really aware that she was slowly breathing the gas in, and his hands slowly closed tighter. He did warn us that she might kick out a little as the gas starts to take over, which she did but it was very was calm and peaceful and she looked up at me for reassurance as she went to sleep. I just carried her to the table and then we were given our buzzer which would go off once she was back in recovery.
needless to say it was a long hour or so later after a quick sandwich and coffee that we met Imogen in recovery, she was sitting up and ready for a Mummy cuddle. The only problem we had was stopping her pulling at her cannula, she kept saying it was hurting her and trying to pull it out, so we had to try and distract her. She did extremely well so before we knew it we were back on the ward, she was still very drowsy so thankfully had a nice long sleep.
Once she woke up we ventured into the play room. The lovely play specialists recognised her from previous visits and remembered her love for Princesses, the next thing they had printed off Frozen colouring pages for her to take home and she was busy playing with all the toys in the playroom so it was just what she needed. Luckily for us it wasn’t too long before the Drs came round to see us, and they were very pleased with how the procedure went. She did well under anaesthetic and they were pleased with the results. The only thing they found were slightly inflamed vocal cords which should right itself over time. It would appear that our Imogen uses her voice too much and in the wrong way I.e. shouting and grunting haha 😂 they said some children do this whilst young and they should grow out of bad habits and realise that they don’t need to be quite so loud. Anyone who is close to Imogen will find this quite funny as she is always trying to entertain and perform to anyone who will show an interest.
So as long as she had a drink, food, went to the toilet and obs looked ok she would be allowed to go home. Luckily being starved since 7am worked in our favour and she was hungry so managed to eat a little sandwich, her throat was dry and a little sore so she wanted plenty to drink and needless to say after two fruit shoots and some squash she had countless toilet trips. Once the cannula had been removed we packed up our things and set off for home feeling extremely relieved and happy that things had been so positive and for once there were no further treatments or complications.
Imogen recovered very quickly from her anaesthetic, she had a little bit of a cough and rough throat for about 48 hours but other than that has been absolutely fine since.
She should be due to have one more test which is a echo scan so nothing too invasive and then we will go back for a review in approx 3 months time. So the great news is that she will now be ok to start her new treatment from the Rheumatology team very soon.
I know they probably won’t see this but I just have to Thank the nurses, anaesthetists, doctors, play specialists and just general hospital staff that we came into contact with during our visit, they were all fantastic and go above and beyond to ensure your little person is happy, relaxed and looked after. Tremendous people each and every one!!!
2 thoughts on “ENT…..stage 2 complete”
Just seen your Fundraising Day on FB…. I am the local Rep for JIA Matters – Norfolk and Suffolk, and I live in Lowestoft! My daughter was diagnosed with JIA at 7 Years old and is now 15. I would love to meet you and buy some raffle tickets, I will try to come on 15th August, but it is my daughter’s birthday.
Would love to hear from you.
Thank you for your message, it’s so lovely to hear from you. I can’t believe you also live in lowestoft and have been going through such a lot of work and similar experiences.
Would love to know more about JIA Matters and of course it would be great to meet you and of course will have raffle tickets for you (should have ready by next week)
Thank you again